Politics / Brazil

Healthcare System Failures: Exabel Peralta's Story

Exabel Peralta, a 63-year-old woman with amyotrophic lateral sclerosis, communicates through eye movement and wishes to live for her family, including her grandson and daughter. Her desire to connect with loved ones drives her will to fight against her condition.
Healthcare System Failures: Exabel Peralta's Story
g1globo • 2026-04-25T11:28:35Z
Source material: 'I don't want to die': with HER, woman spends 150 days in ICU even with home care in court #shorts
Summary
Exabel Peralta, a 63-year-old woman with amyotrophic lateral sclerosis, communicates through eye movement and wishes to live for her family, including her grandson and daughter. Her desire to connect with loved ones drives her will to fight against her condition. She has been in intensive care for over 150 days due to her health insurance's failure to comply with court orders for at-home care. This prolonged hospitalization poses significant risks to her health. Despite her condition, which progressively paralyzes her body, the family has arranged for specialized care at home. However, the health insurance provider has not authorized this necessary treatment. This situation underscores systemic issues in healthcare, where legal rulings are not enforced, increasing risks for patients in hospital environments. The lack of accountability from health insurers raises critical questions about patient rights and safety.
Perspectives
Health Insurance Provider
  • Fails to authorize necessary at-home care despite court orders
  • Claims patient does not have a health condition warranting home treatment
Patient and Family
  • Desire for specialized at-home care to improve quality of life
  • Highlight systemic issues in healthcare and lack of enforcement of legal rulings
Neutral / Shared
  • Patient has been in ICU for over 150 days
  • Family has arranged for specialized care but lacks insurance authorization
Metrics
150 days
duration of stay in intensive care
Prolonged ICU stays can lead to increased health risks and complications
over 150 days she is at a loss in São Paulo
Key entities
Companies
health insurance
Countries / Locations
Brazil
Themes
#exabel_peralta • #healthcare_issues • #icu_experience
Timeline highlights
00:00–05:00
Exabel Peralta, a 63-year-old woman with amyotrophic lateral sclerosis, has been in intensive care for over 150 days due to her health insurance's failure to comply with court orders for at-home care. This situation highlights systemic issues in healthcare, where legal rulings are not enforced, increasing risks for patients in hospital environments.
  • Exabel Peralta, a 63-year-old woman with amyotrophic lateral sclerosis, communicates through eye movement and wishes to live for her family, including her grandson and daughter
  • She has been in intensive care for over 150 days due to her health insurances failure to comply with court orders for at-home care
  • Despite her condition, which progressively paralyzes her body, the family has arranged for specialized care at home, but the health insurance provider has not authorized it
  • This situation underscores systemic issues in healthcare, where legal rulings are not enforced, increasing risks for patients in hospital environments